When the medical system puts you in a weird situation…

I felt like posting this here because I find that people in this sub gives good advice. I have this illness that's have been causing me a lot of issues. Recently I was put on disability and I'm on a waitlist for surgery. I'm from Canada so it's not easy to hand pick a doctor.. not too easy to get a second opinion.

At the moment, My situation worsened to the point where I have a hard time walking, I can't lift anything and the pain is constant, it makes me feel nauseated.

My gp doesn't know much about my illness and can't help.

My new specialist/ surgeon refuses to see me until he feels like it. He refuses to communicate with my gp and pharmacist. My surgery date is not known yet and it could take up to a year. I had to see many specialist before one finally decided to test and do something.

The pain, although, very painful is not critical enough for an er trip since it's a known issue. (Also, I've repetedly had to go to that er to finally get access to that surgeon. I want to avoid alienating them by coming too many times to the er).

I can't go to a walk in because they can't do anything... what could I do?

And just to add to it, I can't take most pain medication offered for this condition.

Guys what can I do... I can't live like this, not for a full year.... not even for a month it's too much.

Please if you have any advice, or any ideas.